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Date: 2020-07-03 00:24:05
Name: Erica Mena
Home page:
Referred by: Phoenix Rising
Location: Helsinki
Comments: Hi Maija,
I'm hoping to get in touch with you - I'm a poet from the US and I moved to Finland last year. I've been living with ME/CFS for three years now, and someone on a ME forum suggested I might ask you for some advice about Finnish doctors. I'd be grateful for any advice you might have, and also would just be delighted to know you. I saw your tweet about having a poem accepted in English for a US journal (I'm not on Twitter, but it was public) - congratulations!

Hope you're doing as ok as possible.



Date: 2019-04-09 04:06:03
Name: Katja
Comments: Hei Maija,
Mitä kuuluu? En tiedä saitko viestini jonkin aikaa sitten? Miten voit? Toivottavasti hyvin. Päivitätkö enää CFS-verkkoa? Vierailin sivulla ja huomasin, että siellä on paljon kiinalaista roskapostia.
Minä onneton unohdin salasanani CFS-verkkoon.

Tuo toinen viestini lähti nyt ensin eli nämä tulevat väärässä järjestyksessä.
Piti mainita, että sain ostettua yhden kirjasi Amazon UK:n kautta.

Terveisin, Katja alias Nallekarhu



Date: 2019-04-09 04:00:14
Name: Katja
Comments: Ps. Sain nyt viimein ja vihdoin ostettua kirjasi uk Amazonin kautta. Siis englanninkielisen version ”Reviving the Broken Marionette”.



Date: 2018-07-19 12:32:53
Name: Andi
Location: Germany
Comments: A german mother of two severe ME/"CFS" cases has published her treatment protocol, which is also supported by Dr. Myhill who has published a copy on her website too!
A Regime for Antiretroviral Treatment of Myalgic Encephalomyelitis: erapieregime-fur.html reatment_of_Myalgic_Encephalomyelitis

Time for Truth – Back to Life Due to an HIV Drug (scroll down for english version!): k-im-leben-dank-hiv.html



Date: 2018-03-04 05:53:47
Name: Brandon Bell
Location: United States
Comments: Great Pokemon ASCII Art! 1 - 131 are done. Do you have ones for #132 - 151?



Date: 2017-09-24 16:40:48
Name: Alexey
Home page: vegan bags
Referred by: Jackson
Comments: Thanks for sharing the great recepies!



Date: 2017-09-24 16:37:25
Name: Jun
Home page:
Location: Tokyo
Comments: Thanks for sharing this! It has always been tough to promote veganism, no matter from any part of the world. We need to bring more attention to the public than being in style and in fashion can be clean, green and cruelty free!



Date: 2016-07-30 16:42:42
Name: Isabella Quigley Moriarty
Location: Cornwall, UK
Comments: Hello Maija -- What a great clear information-filled heart-centering website sharing experience you have created here. THANK YOU. I myself have suffered from CFS and appreciate your generosity.



Date: 2016-05-30 16:08:48
Name: Alison Mawdsley
Location: Berkshire, UK
Comments: Thanks Maija for this website and all the information you share. I particularly enjoyed reading all the comments that you list from people making suggestions for what could be wrong. The one that makes me really cross, is when a dear friend told me how much better she feels when she gets out and meets people, as if I actually want to be laid up in bed!

I have just started LDN, prescribed by a private GP here in the uk after recommendation from my naturopath nutritionist. I am taking sub lingual drops, at least to begin with, starting at 0.5 mg and increasing gradually by 0.5 mg every few days.

I am really keen (OK, desperate!) for it to work, as insomnia has been truly debilitating, and has brought a lot of anxiety and panic attacks, as you mention. It's also interesting for me to read that you say that it takes 3 years to adjust to a chronic illness, as the grief around loss of health, vitality, mobility, social life, independence, a meaningful life is devastating, and depressing.

Your website has been really helpful to read, thank you again.



Date: 2015-05-08 01:17:15
Name: PJ
Location: USA
Comments: Are you aware of any success stories of using LDN in treatment of Restless Legs Syndrome, Neuropathy, Fibromyalgia and Sjogren's Syndrome?



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