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Date: 2013-04-03 06:49:29
Name: Brandon
Home page: Pokemon TXT
Comments: Hi Maija,

Do you think there will be any chance of having all 150 Pokemon in txt?
They're so close to being done, just 20 more Pokemon! I'd put the Mewtwo,
Zapdos and Dragonite txt as my screensaver.

Maija's comment: Thanks Brandon. I'm glad you have enjoyed the Pokémons. I was, of course, always hoping to finish them, but so many other projects came in the way. Unfortunately my health has been extremely poor after it was sabotaged in November 2011. Another problem is that my ASCII art drawing style has changed over the years, so there would likely be visible inconsistency between the old and the new Pokémons. But I'll consider it in the summer. It's always nice to get positive feedback.

 

Date: 2013-04-02 20:34:30
Name: Nattefrost
Home page: Void Of Tranquillity
Referred by: Google
Location: Trondheim, Norway
Comments: Hello Maija, I just want to say that I really like your website! Good to see that there are at least a few of us who are still running "normal" personal sites (and not only profile sites on social networking communities...)
I really appreciate your willpower to work so much with one simple "hobby" site.
Your webpage is very inspiring and honest; for me, it is an extremely pleasant experience to read the thoughts of a likeminded person, I share your views on many topics you have written about - for example, on pro-choice problems, and on how it feels to live with a chronic illness. Thanx for publishing your thoughts.
And, your recipes are cool! I am a vegetarian too - it is a funny and interesting experience to "meet" your versions of many of my own favourites :}}}
Keep up the good work!

Maija's comment: Thank you very much for the kind words.

 

Date: 2013-03-14 17:44:14
Name: Sanni Purhonen
Comments: Hei Maija!

Sähköpostien lähettäminen osoitteeseesi ei jostain syystä onnistu.. Lähestyn täältä - voisitko lähettää näytelmäsi kässärin jossain muussa muodossa kuin pdf-tiedostona, sen avaaminen näkkärien apuvälineillä ei tutultani onnistu..?

yt.

-Sanni-

 

 

Date: 2012-11-30 06:48:00
Name: Hamid
Location: Arnhem
Comments: Hallo dear maija, thank you for this beautiful/informative website.

I have one question, you wrote the progression stopped in 2007 after good treatment, was that one specific treatment? because I also suffer from a progressive kind of ME I think....in the beginning I wasnt bedridden, now after 2 years I am.....what can I do?

Thank you/Dank je.

Maija's comment: Yes, low dose naltrexone. Immunostimulants and antivirals are likely the only kind of drugs that can stop progression. I don't think any supplement immunostimulants (like astragalus) are strong enough, at least I haven't found them very useful myself and haven't heard of any major success stories.

 

Date: 2012-08-27 04:41:12
Name: E. Milo
Location: USA
Comments: Thanks so cmuch for all the great info, Maija! If anyone is interested in my day-to-day experience with LDN (or my experience with CFS/ME and the new diet and supplement plan my doctor has me on to treat autoimmune disorders), I am tracking it on my blog:

You can get to the first post here:  http://ldndiary.wordpress.com/2012/08/19/hello-worl d/ and then go to the next ones in order...

If you want to just get to the most recent post at any time, the blog address is: ldndiary.wordpress.com

 

 

Date: 2012-04-30 15:37:24
Name: Tish
Location: South Texas, USA
Comments: Hello Maija,
I came on your site by accident. I found it interesting that the most the supplements that did not work for you also didn't work for me. I think it's a matter of Liebig's Law of the Minimum, where one thing is a limiting factor and unless you discover and fix that, nothing will really work. I've had CFS for 12 to 15 years now. One naturepath that I saw thinks I have Lyme disease, though the only Lyme treatment that ever helped me was Cat's Claw. I purchased a used scientific microscope and did find I had quite a number of parasites as well as Babesia, which is a common Lyme co-infection. I never was able to definitively see any spirochetes and I have spent countless hours with the microscope. I treated all the parasites, and did get significant improvement in how I felt, but no cure or resolution of cellular energy issues.

I do want to write that I think your thyroid replacement must be inadequate or needs to be natural, because you shouldn't still have symptoms. Inadequate thyroid replacement alone can lead to cfs. Most doctors today do not prescribe near enough. In the past, when doses were adjusted based on symptoms, they ended up being 2 to 3 times higher than they are today. Full replacement for the average person without antibodies against thyroid is between 2-1/4 - 3 grains or 165 to 222 mcg. It is impossible to overdose on any thyroid dose less than full replacement or your full daily needs. This is because of the pituitary regulation which simply adjusts TSH down as needed to keep levels normal in the blood. As long as the dose does not exceed total needs, it is impossible to overdose. Thyroid replacement is not additive. It does not add on top of daily production from the gland. Any thyroid you take is detected by the pituitary, which then tries to adjust TSH to maintain normal blood thyroid level. In fact, T4 meds especially, seem to almost completely shut down TSH production leading the person to actually be hypothyroid on any dose less than full replacement. If you want more details and information on why this is, please email me.

Tish

 

 

Date: 2012-02-25 19:05:28
Name: Valerie
Referred by: Living with CFS blog
Location: Canada
Comments: Maija, I cannot tell on the guestbook if this is working with my contact info. It is not coming up in the site and I am thinking you won't be able to find me.
This is regarding submitting aricles for ME/CFS book I am writing and coordinating in Canada.

Maija's comment: The email addresses do show up to me, even though they are not shown on the site (to avoid people getting spam). :->

 

Date: 2012-02-25 18:15:32
Comments: Hello Maija. How are things? I am hoping to connect with you from Canada. I am writing a memoir/information book on ME/CFS, have had it for 21 years myself and am interested in some of your articles on your site. Would you like to learn more about it and participate? Your own story, how it is in Finland, and the interviews of the others with illness, especially teens, would be a great addition to this book project. I hope you receive this and email me with your ideas and permissions to quote material and whole articles. The goal of the book is to raise awareness, knowledge, understanding and action in the general public for ME/CFS- not for other patients necessarily. I am not a writer by trade so it is a task but it has been a couple years and things are moving slowly along.

 

 

Date: 2012-02-23 22:12:26
Name: Angelsolace
Home page: www.about.me/angelsolace
Location: UK
Comments: Thank you so much for taking the time and I'm sure lots of energy to put such helpful info on your site and for sharing your own story.
I have purchased your book, and look forward to reading it more over this year. I wish I was as clever as you! :)

 

 

Date: 2012-01-07 01:27:09
Name: ZN
Referred by: Google :)
Location: New Zealand
Comments: Hi Maija
Thank you very much indeed for your website. The immense amount of care and effort that you have taken in treating your CFS and developing your writing skills is very evident. I hope this year is a success for you.
I have a suspected autoimmune condition myself and your website is proving to be a valuable resource in directing my research into treatment options. Thanks again.

 

 

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