Date: 2014-02-16 16:54:12
Name: Mika Hiltunen
Home page: Soursop Farm Thailand
Referred by: Search engine
Location: Nakhon Ratchasima, Thailand
Miten saan sinuun yhteyden?
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Date: 2014-02-16 16:54:12
Date: 2014-01-08 04:29:17
Name: John Peterson
Home page: Angelic Organics
Referred by: my Finnish wife, Haidy
Location: Caledonia, IL, USA
Comments: You are a tremendous inspiration. I did not have time to investigate your site thoroughly, but still, I am so inspired that you keep going, in spite of your illness, and that you are so generous with your communication. My lovely wife Haidy (with Hashimoto's and we don't know what else) is Finnish, so I suspect that is part of why your work jumped out at her. Maybe we'll meet some day. I used to spend quite a bit of time in Amsterdam, because I was crisscrossing Europe with a film "The Real Dirt on Farmer John." Anyway, I had to write something to acknowledge you. Farmer John
Date: 2013-09-16 18:05:33
Name: Chris Pfeiffer
Referred by: Google
I searched on DMAE and CFS and found your website. First, thanks for putting together such a comprehensive list and good luck with your condition. I have a few questions as I cope with my condition and try to save my job. What supplement/medicine do you think has helped most with your fatigue? Also, how would you describe your energy level and functionality today. Do you nap several times a day. etc/
Maija's comment: I don't really suffer from CFS/ME much at all, only hypopituitarism which it has caused and which will likely kill me. LDN is the only thing that has made a major impact in my fatigue. Many supplements have helped but they've all stopped working. Those that did help the most while they worked were carnitine fumarate (ALC and normal carnitine helped too, but not as much), lipoic acid and oral vitamin B12. Now even vitamin B12 injections do nothing. My physical condition is almost normal thanks to LDN. I used to be able to work 15-hour days even with CFS/ME, thanks to LDN again, but hypopituitarism has reduced it to some 1-2 hours again. CFS/ME never made me nap, I wasn't able to (and LDN made away with the need for bedrest), but because of hypopituitarism I have sometimes needed up to five naps a day.
Date: 2013-04-03 06:49:29
Home page: Pokemon TXT
Comments: Hi Maija,
Do you think there will be any chance of having all 150 Pokemon in txt?
They're so close to being done, just 20 more Pokemon! I'd put the Mewtwo,
Zapdos and Dragonite txt as my screensaver.
Maija's comment: Thanks Brandon. I'm glad you have enjoyed the Pokémons. I was, of course, always hoping to finish them, but so many other projects came in the way. Unfortunately my health has been extremely poor after it was sabotaged in November 2011. Another problem is that my ASCII art drawing style has changed over the years, so there would likely be visible inconsistency between the old and the new Pokémons. But I'll consider it in the summer. It's always nice to get positive feedback.
Date: 2013-04-02 20:34:30
Home page: Void Of Tranquillity
Referred by: Google
Location: Trondheim, Norway
Comments: Hello Maija, I just want to say that I really like your website! Good to see that there are at least a few of us who are still running "normal" personal sites (and not only profile sites on social networking communities...)
I really appreciate your willpower to work so much with one simple "hobby" site.
Your webpage is very inspiring and honest; for me, it is an extremely pleasant experience to read the thoughts of a likeminded person, I share your views on many topics you have written about - for example, on pro-choice problems, and on how it feels to live with a chronic illness. Thanx for publishing your thoughts.
And, your recipes are cool! I am a vegetarian too - it is a funny and interesting experience to "meet" your versions of many of my own favourites :}}}
Keep up the good work!
Maija's comment: Thank you very much for the kind words.
Date: 2013-03-14 17:44:14
Name: Sanni Purhonen
Comments: Hei Maija!
Sähköpostien lähettäminen osoitteeseesi ei jostain syystä onnistu.. Lähestyn täältä - voisitko lähettää näytelmäsi kässärin jossain muussa muodossa kuin pdf-tiedostona, sen avaaminen näkkärien apuvälineillä ei tutultani onnistu..?
Date: 2012-11-30 06:48:00
Comments: Hallo dear maija, thank you for this beautiful/informative website.
I have one question, you wrote the progression stopped in 2007 after good treatment, was that one specific treatment? because I also suffer from a progressive kind of ME I think....in the beginning I wasnt bedridden, now after 2 years I am.....what can I do?
Thank you/Dank je.
Maija's comment: Yes, low dose naltrexone. Immunostimulants and antivirals are likely the only kind of drugs that can stop progression. I don't think any supplement immunostimulants (like astragalus) are strong enough, at least I haven't found them very useful myself and haven't heard of any major success stories.
Date: 2012-08-27 04:41:12
Name: E. Milo
Comments: Thanks so cmuch for all the great info, Maija! If anyone is interested in my day-to-day experience with LDN (or my experience with CFS/ME and the new diet and supplement plan my doctor has me on to treat autoimmune disorders), I am tracking it on my blog:
You can get to the first post here: http://ldndiary.wordpress.com/2012/08/19/hello-worl d/ and then go to the next ones in order...
If you want to just get to the most recent post at any time, the blog address is: ldndiary.wordpress.com
Date: 2012-04-30 15:37:24
Location: South Texas, USA
Comments: Hello Maija,
I came on your site by accident. I found it interesting that the most the supplements that did not work for you also didn't work for me. I think it's a matter of Liebig's Law of the Minimum, where one thing is a limiting factor and unless you discover and fix that, nothing will really work. I've had CFS for 12 to 15 years now. One naturepath that I saw thinks I have Lyme disease, though the only Lyme treatment that ever helped me was Cat's Claw. I purchased a used scientific microscope and did find I had quite a number of parasites as well as Babesia, which is a common Lyme co-infection. I never was able to definitively see any spirochetes and I have spent countless hours with the microscope. I treated all the parasites, and did get significant improvement in how I felt, but no cure or resolution of cellular energy issues.
I do want to write that I think your thyroid replacement must be inadequate or needs to be natural, because you shouldn't still have symptoms. Inadequate thyroid replacement alone can lead to cfs. Most doctors today do not prescribe near enough. In the past, when doses were adjusted based on symptoms, they ended up being 2 to 3 times higher than they are today. Full replacement for the average person without antibodies against thyroid is between 2-1/4 - 3 grains or 165 to 222 mcg. It is impossible to overdose on any thyroid dose less than full replacement or your full daily needs. This is because of the pituitary regulation which simply adjusts TSH down as needed to keep levels normal in the blood. As long as the dose does not exceed total needs, it is impossible to overdose. Thyroid replacement is not additive. It does not add on top of daily production from the gland. Any thyroid you take is detected by the pituitary, which then tries to adjust TSH to maintain normal blood thyroid level. In fact, T4 meds especially, seem to almost completely shut down TSH production leading the person to actually be hypothyroid on any dose less than full replacement. If you want more details and information on why this is, please email me.
Date: 2012-02-25 19:05:28
Referred by: Living with CFS blog
Comments: Maija, I cannot tell on the guestbook if this is working with my contact info. It is not coming up in the site and I am thinking you won't be able to find me.
This is regarding submitting aricles for ME/CFS book I am writing and coordinating in Canada.
Maija's comment: The email addresses do show up to me, even though they are not shown on the site (to avoid people getting spam). :->
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