Date: 2014-08-22 19:09:54
Name: Sue Vogan
Comments: I would like to invite everyone to the LDN Research Trust conference in Las Vegas, November 6-8, 2014. Please contact me for information or visit LDN Research Trust's website.
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Date: 2014-08-22 19:09:54
Date: 2014-06-20 19:58:31
Name: Michael Paul Gonzalez
Home page: MichaelPaulGonzalez.com
Referred by: Google
Location: Los Angeles, CA
Comments: Hi there! I see that you have a "CripFic" list on your website. I'd love to recommend my latest book, Miss Massacre's Guide to Murder and Vengeance, with a double amputee female protagonist. It's a dark revenge tale. If you'd like a free e-copy, I'd be happy to send one for your review. Thanks!
Date: 2014-05-30 01:18:13
Name: Kerry Johnson
Location: Bellingham, Washington, U.S.A.
Comments: Hi, Maija.
I also read the interview that Cort Johnson did you you.
Thanks for all that you do for DFS/ME folks -- I really appreciate it.
Date: 2014-05-28 20:50:53
Name: Rob Wijbenga
Location: Den Bosch, Holland
Comments: Hi Maija.
I just read the interview you had with Cort Johnson and to my surprise I read you're living in Holland.
I'm chairman of the Dutch ME/cvs Vereniging, and I don't now how yet, but do you think you could be of use for us and we for you?
If so, please contact me at firstname.lastname@example.org or at my personal email.
Wishing you all the luck and wisdom needed woth your personal problems
Date: 2014-04-23 18:16:23
Comments: Hi Maija,
Thanks for sharing your findings. I would like to add to your information about iodine that the combination of iodine and potassium iodide is supposed to be more effective for hypothyroidism. See Dr. David Brownstein's books 'Iodine: why you need it, why you can't live without it' and 'Overcoming thyroid disorders'.
You may want to check out www.guptaprogramme.com for an amygdala retraining programme that has cured many people of CFS/ME/fybromyalgia/MCS. It was developed by Ashok Gupta in England. He used this programme to recover from CFS 10 years ago and he has been well ever since. Highly interesting.
Good luck to you!
Maija's comment: I now have both primary and secondary hypopituitarism, so anything for hypothyroid other than thyroid hormones is unlikely to help any.<p> Amygdala training is quackery. Why pour money on scammers when there are dozens of real treatments?
Date: 2014-04-05 15:31:11
Comments: You have definitely put a lot of work into these descriptions. Thanks for sharing your thoughts. My CFS has improved a lot with acupuncture and traditional Chinese herbs - have you tried these? If not, I hope you will, because I think it could make a difference for you.
Maija's comment: I've tried acupuncture for my TRPs. It wasn't helpful, probably because there are such deep-rooted metabolic issues behind them. I've tried quite a few Chinese herbs. Some have helped (e.g. ginseng and rhodiola), but all supplements that improve my functionality eventually stop working. Sophora flavescens still helps with sleep, as that type of benefit doesn't poop out. I also use Siberian ginseng and andrographis in cold prevention/treatment, though after my pituitary was destroyed I've found cat's claw superior to them.<p> Currently my problem isn't really CFS/ME, but the life-threatening hypopituitarism it has caused me. And it doesn't really make much sense to treat it with things other than hormones. Unless there are some treatments for hypoglycemia that I haven't yet tried, but I've tried most, at least, and none help.
Date: 2014-03-20 10:29:49
Name: Helena Marsden
Home page: Pastel Pics - Helena Marsden
Comments: Hei, Autoit minua noin vuosi sitten ohjeillasi LDN annostelusta ja käytöstä. Lääkärini kirjoitti reseptin ja olen löytänyt itselleni sopivan annostuksen. Kiitos ohjeistasi!! Ilman niitä en olisi saanut lääkettä, enkä voisi nyt paljon paremmin kuin aikaisemmin.
Toinen asia.Olen ryhtynyt kirjoittamaan blogia aiheesta ME ja minä (http://mejamina.blogspot.fi/). Haluaisin kertoa blogin olemassaolosta CFS-verkolle (jota yllä pidät). Olisiko se suotavaa, ja kuinka se onnistuisi?
Date: 2014-02-16 16:54:12
Name: Mika Hiltunen
Home page: Soursop Farm Thailand
Referred by: Search engine
Location: Nakhon Ratchasima, Thailand
Miten saan sinuun yhteyden?
Date: 2014-01-08 04:29:17
Name: John Peterson
Home page: Angelic Organics
Referred by: my Finnish wife, Haidy
Location: Caledonia, IL, USA
Comments: You are a tremendous inspiration. I did not have time to investigate your site thoroughly, but still, I am so inspired that you keep going, in spite of your illness, and that you are so generous with your communication. My lovely wife Haidy (with Hashimoto's and we don't know what else) is Finnish, so I suspect that is part of why your work jumped out at her. Maybe we'll meet some day. I used to spend quite a bit of time in Amsterdam, because I was crisscrossing Europe with a film "The Real Dirt on Farmer John." Anyway, I had to write something to acknowledge you. Farmer John
Date: 2013-09-16 18:05:33
Name: Chris Pfeiffer
Referred by: Google
I searched on DMAE and CFS and found your website. First, thanks for putting together such a comprehensive list and good luck with your condition. I have a few questions as I cope with my condition and try to save my job. What supplement/medicine do you think has helped most with your fatigue? Also, how would you describe your energy level and functionality today. Do you nap several times a day. etc/
Maija's comment: I don't really suffer from CFS/ME much at all, only hypopituitarism which it has caused and which will likely kill me. LDN is the only thing that has made a major impact in my fatigue. Many supplements have helped but they've all stopped working. Those that did help the most while they worked were carnitine fumarate (ALC and normal carnitine helped too, but not as much), lipoic acid and oral vitamin B12. Now even vitamin B12 injections do nothing. My physical condition is almost normal thanks to LDN. I used to be able to work 15-hour days even with CFS/ME, thanks to LDN again, but hypopituitarism has reduced it to some 1-2 hours again. CFS/ME never made me nap, I wasn't able to (and LDN made away with the need for bedrest), but because of hypopituitarism I have sometimes needed up to five naps a day.
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